- Local: What's new in Bloomington?
- Research news: From the lab
- Get involved: Join a study, survey
- Smart spending: Buy cards, stamps
- News archives
America's Worst Charities report worth a look
Is your favorite breast cancer research organization on the new list of America's worst Charities? The Tampa Bay Times and the Center for Investigative Reporting compiled figures from hundreds of charities' federal tax filings and published a ranking of the 100 worst.
You can see the entire report online. If you are particularly concerned about breast cancer or cancer charities, you can search with those keywords to see those related organizations.
Clinicians must inform women of density status
As of July 1, clinicians in Indiana must inform women if they have dense breast tissue when they get their mammogram results. Indiana is one of only a handful of states with this requirement.
Women with denser breasts have a higher risk of breast cancer compared to women of the same age without dense tissue, according to the U.S. Department of Health and Human Services. The new law ensures that women receive this information after mammography so that they can better understand their breast cancer risk. Read more about it.
Follow up clinic launches
A new Breast Cancer Care Follow-up Clinic will be open for walk-ins the second Tuesday of every month beginning June 11 at the IU Health Rehabilitation and Sports Medicine Center West, 2499 W. Cota Dr. Certified lymphedema therapists will provide screenings of limb volume and upper extremity range of motion and strength. For more info, call 812-353-9378 or email the clinic. Learn more about lymphedema and your risk.
New book advises friends of cancer patient
When Cancer Strikes a Friend now is available to answer the questions and offer guidance for those who want to help their friends with cancer. A work 10 years in the making, it covers emotional and practical aspects of supporting friends.
The book is by former resident Bonnie Draeger and is a project of Friends & Cancer, a nonprofit dedicated to creating materials and learning opportunities to prepare and encourage friends to help and support people with cancer.
The book features local contibutors Gena Asher of BreastCancerFYI.org, Janice Ross of the Olcott Center for Cancer Education and Catherine Sherwood-Laughlin, IU health sciences professor who has taught a popular course on cancer. Nationally known health care professionals offer their expertise on topics from learning to communicate to finding your way as a friend. Read more about the project at the Friends & Cancer website.
Road to Recovery needs drivers
The American Cancer Society's Road to Recovery program to provide cancer patients with transportation needs some volunteers. Are you available?
The program provides drivers for cancer patients who do not have transportation to treatments or medical appointments. Volunteer drivers will be certified by spending about a half hour watching a DVD and filling out an application. The ACS will check driving records and conduct background checks.
If you are interested, contact Terri Jones at Terri.Jones@cancer.org or call (812)376-3148, or toll-free, (800)227-2345.
Do you have a disaster plan?
Hurricanes, nor'easters, earthquakes or perhaps just bad winter storms interrupt cancer treatments and create panic for patients. Cure Magazine presents some advice for patients to prepare for disaster, as well as tips we all can use and linkst to resources.
From the news pages:
Court rules genes cannot be patented
The Supreme Court ruled June 13 that DNA occurs in nature and companies cannot patent genes found in humans. This is a setback for companies such as Myriad, which developed a genetic test for the BRCA breast cancer genes, but others say the ruling will open up more avenues to testing as well as more paths for researchers to conduct their own explorations into genetic causes for disease. Shortly after the ruling, several universities and labs said they would begin offering testing for BRCA 1 and 2 immediately.Read a recap from the New York Times, and check out this article from Breast Cancer Action.org.
10 years of tamoxifen best?
Two studies have found that taking tamoxifen for 10 years instead of the long-recommended five years may provide extended risk for recurrence, two studies have found. You'll want to read about what this means for the side effects of blood clots and endometrial cancer, which often were cited as reasons for stopping tamoxifen after five years. This report from ASCO also sums up the findings.
Osteoporosis drug may stop cancer cells
As many breast cancer survivors also have osteopenia or osteoporosis, thanks in large part to aromatase inhibitors, this could be great news. A drug approved in Europe to treat osteoporosis has now been shown to stop the growth of breast cancer cells, even in cancers that have become resistant to current targeted therapies, according to a Duke Cancer Institute study. Check out this report from Science Daily.
Exercise, exercise, exercise...
We hear this time and again: Excercise helps lower risk of breast cancer and risk of recurrence, for a variety of reasons ranging from hormone regulation to obesity. So here's the latest report on a study that bears out all these theories.
Young women should not delay surgery
A study found that young women who waited longer than six weeks to have breast cancer surgery had worse survival than young women who had surgery earlier. This was especially true of underinsured women and minority women. Read more about the study.
Angelina Jolie story sparks awareness
Actress Angelina Jolie's column in the New York Times about her decision to have a double mastectomy in light of her genetic status has put the spotlight on both genetic testing and prophylactic mastectomy. And, the Supreme Court recently heard the case of gene patenting, a controversial case that has broad implications.
Need to catch up on this news? Check out these links to more info:
- Read Angelina Jolie's column.
- Read a follow-up article with comments from doctors and researchers.
- Read a doctor's response in a CNN Opinion piece about the rarity of the breast cancer genes.
- Web MD offers feedback and links to research websites.
- Some experts recommend tamoxifen or raloxifine for women at high risk, even if they have no evidence of breast cancer.
- Read the National Cancer Institute's fact sheet on risk and genetic testing.
- Myriad Genetics owns the patent to test genes, and it developed the testing for BRCA1 and BRCA2.
- Read about the arguments before the Supreme Court on the Myriad patent. The Supreme Court is expected to issue its ruling on the Myriad Genetics case before its term ends in June.
Another study finds basis for chemo brain
After years of complaints of brain fog or cognitive function impairment, women are vindicated by several studies that find a scientific basis for "chemo brain." You can read about the latest one here.
Cure addresses living with metastatic cancer
Around 20 percent of cancer patients diagnosed annually in the U.S. have distant or advanced disease, meaning that their cancer has spread, or "metastasized," to a different site from the original tumor. Read Cure magazine's Living on the Edge: Some Patients with Metastatic Cancer Live Long and Well to learn more.
Learn about survivors' 'Emotional Journey'
If you are a patient, survivor or caregiver, you probably have witnessed the range of emotions breast cancer patients display over the course of treatment and into survivorship. Indiana University researchers, led by Susan Woods, have released a study about just this topic, "The Emotional Journey of Long-Term Breast Cancer Survivors Five Years and Beyond," and Breast Cancer: FYI is proud to host the entire study on this website.
In the study, Woods and fellow researchers Nancy T. Ellis and Kathleen R. Gilbert look at nine themes: Changed Sense of Identity, Taking Control, Why?, Fears, Significant Milestones, Mementos, Marriage and Family, Spirituality and Words of Wisdom. One of the more powerful sections, Results, features survivors sharing their reflections on these topics. This section should be a must-read for any health professionals working with survivors, and may be useful to patients just finishing treatment, too.
Get started on the intro page, then follow the links.
More research news is available from the Archives page.